Entry: What a ride... Saturday, April 23, 2005



*yawn, stretch* Well, I made it to my doctors appt. on Monday.. they changed me from 9:00 am to 12:15 pm then to 2:00 pm... seems the doctor got tied up in surgery and they had to cancel all his morning appointments and I swear they must have set *everyone* for 2:00!

I got there at about 1:50 and there was one other patient and her husband, at 2:00 it was like they opened the flood gates, there were literally people sitting on the floor waiting to see the doctor.

I was the second one called back at about 2:30.  Got all stretched out and comfy on the hard wooden bench they called an exam table for my pump refill.  Doc comes in and starts pushing and twisting trying to find the pump.  Sticks the needle in and is a bit concerned about the fluid he is getting back cause he doesn't think he is inside the pump yet. 

This fluid return could be from the catheter coming off of the pump or the pump has flipped and the catheter is off.. or any number of things that could be wrong. 

Okay.. at this point I know I looked like a cornered cat in a room full of wolves. 

They move me to another room so they can view the pump under the x-ray.  Pretty cool since I'd never seen the pump before!

Everything looked to be in order with the pump, and he was able to use the needle under x-ray to extract the rest of the meds and inject the new refill.  Turns out he *was* in the pump in the other room, but the center of it is rather "mushy" no resistance to the needle.  Should be like pushing it through a stopper.  But not me.. oh.. you *know* I'd have to be difficult!

So, since I'd been having so much pain he decides to roll the x-ray thingy around and just make sure the catheter is still secure in the spine.  I told him that the dr. in Nashville used a "double somethingorother" to hold it in place when he repaired it last year.  So I'm laying there watching this and I see these metal things, I see 2 "sets" of them and think to myself, "oh, there is the 'holders'" and I say *out loud* "they look like hook and eyes"... and as soon as it's out of my mouth, I wanted to grab the words back....

They *were* hook and eyes... of my bra.  DUH!  Of course I couldn't let my stupidity alone so I said "Oh, that is my bra"... at which time the whole room burst into laughter.  Hey, anything for a little tension relief.. right?

He did notice one thing that was a cause for some concern.  When they repaired the catheter last year, the part that had fractured off was still floating in my spinal fluid.  They didn't take it out!  I knew this, but didn't think much about it.  New doc is rather concerned about this thing floating around in there.  Oh well, I guess if it travels up and shoots through my brain, Tom and Tyler will be set for life after they sue the Nashville doctor. *snicker*

So, in the refill, there was an increase in the morphine ratio with the Baclofen.  Then once both were injected, the amount I receive of the mixture was increased.  I still have some pain, but nothing like I *was* having.  The increase has made me super sleepy, that's normal until I get used to it.  I go back next month for another tune-up.  They will increase the daily dosage again (not a refill just an increase).

So the rest of this week, including today has just been a blur for me!

Lets see, what else.  Oh, my Aunt was suppose to have her kidney removed on Tuesday, but her blood count was too low, so they had to cancel it, will try again next week.  I feel sorry for her, she was all psyched up for it and then had to stop.  She's been really positive throughout the whole thing, but this has *got* to be torture.

Phone was out for 2 days this week.  Not sure what happened there, but at first it just rang busy to anyone trying to call in, then it just rang and rang to anyone calling in.  Finally got that fixed.

Well, guess that's all the news that's fit to tell.  Now it's time for a nap.. HEY!  I've been up for 
45 minutes, what do you expect!!  :o)

   3 comments

Green-Eyed Lady
May 11, 2005   09:20 AM PDT
 
What an ordeal! That floating piece concerns me. (Sorry I've not been around. I come here when I can, but still think of you often.)
Tee
May 4, 2005   10:59 AM PDT
 
I was apprehensive about it too.. and once I got it put in, I was really upset at having this *thing* in my body. I felt.. out of control.. I guess you'd say. But over time, I've gotten used to it. And last year when the catheter fractured, I found exactly how well the pump *is* working at pain control. When it broke, and I wasn't getting the relief of my pain and spacticity, I was begging to have it fixed!

It takes some getting used to, that's for sure, but yea, sliced bread and all that! :)
mdmhvonpa
April 25, 2005   10:09 AM PDT
 
That whole pump thing would make me sort of apprehensive. But I suppose like anything else you kinda get used to it. Then again, I'll bet it is the best thing since sliced bread if you need it.

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